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> If I'm giving them my DNA, I want to know exactly how it can be used, how it will be anonymized, to whom they can sell it, whether I can opt out at some point

> If I'm giving them my DNA, I want to know exactly how it can be used, how it will be anonymized, to whom they can sell it, whether I can opt out at some point, etc. ... one reason I haven't sent a DNA sample to 23andMe, etc., is because I can't control what happens to my data after that point, and I'm not even sure if I can find out. https://www.23andme.com/privacy/#drawer-researchparticipation https://www.23andme.com/privacy/#drawer-researchparticipatio... Customers can opt in or opt out of our research at any time. If you opt out, we will discontinue using your information for research within 30 days.

goodplay 10y ago
Do you destroy this information once the owner has chosen to opt out? The reason I, and I suspect many others, avoid these types of services is the risk of this information being inherited or possessed by an entity that would use this information in ways to which I do would not consent nor approve. This information would not only affect me personally, but also my children. Germans are more privacy-aware than most for a good reason. I dread a future where an evil government gets a hold of this data and the technology to effectively use it.