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The solution to that would be granting permission to use anonymized datasets for research purposes, allowing all research to continue as is. However, patients
by jeswin 11y ago
The solution to that would be granting permission to use anonymized datasets for research purposes, allowing all research to continue as is.
However, patients not owning their own health data makes no sense. What data could belong more to a person than their own health data?
- grahamburger 11y agoFrom that perspective it seems equally absurd that a person wouldn't automatically own the copyright on a photo of themselves, and yet they don't - the photographer does. It seems plausible that the person who creates the physical record owns the copyright, regardless of the subject. (I don't disagree with you. Just a counterpoint.)