4 ms·

Ask HN: Pancreatic Cancer Resources

9 points by LinkPlug 11y ago

This is still very new to us and I couldn't think of a better place to try to get a head start on beating this. I hope when future hackers go searching for this on HN that they will find a list of the best resources. Thank you :)

LinkPlug 11y ago
A past HN discussion about cancer [not pancreas specific, though] https://news.ycombinator.com/item?id=9628682 https://news.ycombinator.com/item?id=9628682
melling 11y ago
Pancreatic cancer is a tough one. Try reading some stuff about Randy Pausch, who did the "Last Lecture" http://www.cmu.edu/randyslecture/honor/index.html http://www.cmu.edu/randyslecture/honor/index.html Perhaps there are organizations or treatments that you will learn about. Also, this PBS series on cancer was informative: http://www.pbs.org/show/story-cancer-emperor-all-maladies/ http://www.pbs.org/show/story-cancer-emperor-all-maladies/ Think it might be on Netflix. It's based on a best-selling book: https://www.goodreads.com/book/show/7170627-the-emperor-of-all-maladies https://www.goodreads.com/book/show/7170627-the-emperor-of-a...
- edwinespinosa09 11y ago
  Dealing with the diagnosis and treatments/surgery is indeed tough physically and psychologically. Physically it's important to understand how to deal with things day to day. Article is on nutrition post-diagnosis from John Hopkins. http://pathology.jhu.edu/pancreas/TreatmentNutrition.php?area=tr http://pathology.jhu.edu/pancreas/TreatmentNutrition.php?are... Psychologically the whole team (family/friends/practitioners) need to be on the same page and transparent. http://www.kevinmd.com/blog/2013/03/fine-balance-hope-cope-cancer-patients.html http://www.kevinmd.com/blog/2013/03/fine-balance-hope-cope-c... Patrick Swayze had this condition and despite his prognosis filmed a movie and did his own stunts.
brudgers 11y ago
My beloved is currently back in oncology. Her career has included working in hospice, geriatrics and alzheimer's. The place to start irrespective of having pancreatic cancer or not is with a living will and an advanced health directive. Even if you're going to freeze your head, you'll likely benefit. http://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/living-wills/art-20046303 http://www.mayoclinic.org/healthy-lifestyle/consumer-health/... Good luck.
edwinespinosa09 11y ago
This might not help post-diagnosis but maybe will help a lot of people in the future. As they say the best type of care is preventative care. Pre-Cancer screening (Gates & Bezos invested) http://www.grailbio.com/?ref=producthunt http://www.grailbio.com/?ref=producthunt Here's a better article from the MIT review http://www.technologyreview.com/news/545326/illuminas-bid-to-beat-cancer-with-dna-tests/ http://www.technologyreview.com/news/545326/illuminas-bid-to...
melling 11y ago
This site has a video about someone who had pancreatic cancer and was cured: http://www.cancermoonshot2020.org http://www.cancermoonshot2020.org

9 points by LinkPlug 11y ago

LinkPlug 11y ago

A past HN discussion about cancer [not pancreas specific, though] https://news.ycombinator.com/item?id=9628682 https://news.ycombinator.com/item?id=9628682

melling 11y ago

Pancreatic cancer is a tough one. Try reading some stuff about Randy Pausch, who did the "Last Lecture" http://www.cmu.edu/randyslecture/honor/index.html http://www.cmu.edu/randyslecture/honor/index.html Perhaps there are organizations or treatments that you will learn about. Also, this PBS series on cancer was informative: http://www.pbs.org/show/story-cancer-emperor-all-maladies/ http://www.pbs.org/show/story-cancer-emperor-all-maladies/ Think it might be on Netflix. It's based on a best-selling book: https://www.goodreads.com/book/show/7170627-the-emperor-of-all-maladies https://www.goodreads.com/book/show/7170627-the-emperor-of-a...

edwinespinosa09 11y ago
Dealing with the diagnosis and treatments/surgery is indeed tough physically and psychologically. Physically it's important to understand how to deal with things day to day. Article is on nutrition post-diagnosis from John Hopkins. http://pathology.jhu.edu/pancreas/TreatmentNutrition.php?area=tr http://pathology.jhu.edu/pancreas/TreatmentNutrition.php?are... Psychologically the whole team (family/friends/practitioners) need to be on the same page and transparent. http://www.kevinmd.com/blog/2013/03/fine-balance-hope-cope-cancer-patients.html http://www.kevinmd.com/blog/2013/03/fine-balance-hope-cope-c... Patrick Swayze had this condition and despite his prognosis filmed a movie and did his own stunts.

brudgers 11y ago

My beloved is currently back in oncology. Her career has included working in hospice, geriatrics and alzheimer's. The place to start irrespective of having pancreatic cancer or not is with a living will and an advanced health directive. Even if you're going to freeze your head, you'll likely benefit. http://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/living-wills/art-20046303 http://www.mayoclinic.org/healthy-lifestyle/consumer-health/... Good luck.

edwinespinosa09 11y ago

This might not help post-diagnosis but maybe will help a lot of people in the future. As they say the best type of care is preventative care. Pre-Cancer screening (Gates & Bezos invested) http://www.grailbio.com/?ref=producthunt http://www.grailbio.com/?ref=producthunt Here's a better article from the MIT review http://www.technologyreview.com/news/545326/illuminas-bid-to-beat-cancer-with-dna-tests/ http://www.technologyreview.com/news/545326/illuminas-bid-to...

melling 11y ago

This site has a video about someone who had pancreatic cancer and was cured: http://www.cancermoonshot2020.org http://www.cancermoonshot2020.org