14 ms·
I wouldn't say this is in the same league as the many other unproven quacky treatments. For people in the late-stage what do they do in the mean time if nothing
by msie 11y ago
I wouldn't say this is in the same league as the many other unproven quacky treatments. For people in the late-stage what do they do in the mean time if nothing else works? They mention striking improvements. I wonder what they mean by that. From not talking to talking is pretty impressive. I understand one shouldn't be leaping at every faint glimmer of hope though. It will be emotionally draining.
- cpncrunch 11y agoEvery single quacky treatment has "striking improvements", and so do pretty much all open-label trials which later turn out to be useless. I've been looking into this for a long time (for other illnesses). I would recommend instead of using unproven treatments, go with the proven treatments and also look into the placebo effect itself and how it works and then replicate that effect without spending money on dubious treatments. EDIT google "liberation therapy" for a good example.
- msie 11y agoSure. Sadly, I just looked up nilotinib and it's very expensive. I just assumed it was cheaper. :-( I have followed "liberation therapy" and was really disappointed. Since it's a surgical procedure I'd just be more skeptical of trying it out vs taking a pill.