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My close friend in Canada has two children diagnosed with autism. The Canadian healthcare system has completely failed my friend's entire family. It is by far
by steven2012 11y ago
My close friend in Canada has two children diagnosed with autism. The Canadian healthcare system has completely failed my friend's entire family. It is by far the biggest condemnation of Canada's health care system that I've seen.
His daughter was diagnosed with autism at age 3. In Canada, there is a 2.5 year long waiting list to get any sort of therapy to help her. If you want to do it privately, it costs $80k/yr, something my friend could never afford. I have another friend here in the Bay Area who is a pediatrician that specializes developmental disorders like autism, ADD, etc, and he was shocked and horrified that she would not be able to get any therapy is the two most important years of her life. He said Kaiser in CA has probably the very best therapy and assistance if your children are diagnosed with autism (although this is because of a lawsuit several years ago from someone who accused them of not doing enough).
His son was diagnosed at age 1.5 yrs, early this year, and again, he has to wait 2.5 years to get this therapy. Even worse, his son has had medical issues, and his shitty pediatricians seem to chalk everything up to his autism. For example, his son was suffering for months from ear infections, but because he couldn't verbalize it, all he could do was tug on his ear, scream, and vomit. They kept going to emergency and back to the pediatrician, begging for a referral for an ENT, and she refused. She said it was likely just the son being autistic. They were furious but they literally had no other options, except try to find a pediatrician who was actually accepting new patients, which is rare in his city. Finally, after several months of this poor boy suffering daily, one emergency room doctor said right away that he had an inner ear infection and needed to get tubes put in. This required getting a referral again from the original pediatrician for an ENT, and then the ENT making the decision that he needed the tubes inserted.
The appointment for the ENT is scheduled for November, and it was made in July.
As far as I can tell, the Canadian healthcare system has completely failed my friend at every step. Not only is therapy for his two children far too late, not only is the private option completely unaffordable, but the doctors are untrained to deal with autistic children, don't know how to diagnose properly for an autistic child, but also the waiting times are ridiculously long to the point where it's useless.
- thinkcomp 11y agoEar infections are common with autism and consistent with moderate hydrocephalus, which might be a sign of cerebellar dysmorphism. Increased intracranial pressure can distort the shape of the skull making it slightly bigger, leaving extra space for infectious bacteria, especially with exposure to water. DWV also results in the ears being placed slightly lower than normal (or maybe the rest of the head just looks bigger). Your friend should definitely see an ENT to get any infections cleared up, but an MRI wouldn't be the worst idea, either.
- kuschku 11y agoInterestingly, this is exactly what happened to me – luckily I did not need tubes, but it could be surgically fixed. I was also diagnosed with autism, but am on the low end of the spectrum – I barely qualify as asperger, and while it was bad in early middle school (just using violence, hitting heat against walls, etc), by the time I finished high school, it was not diagnosable anymore.
- fingerprinter 11y agoFWIW, we MOVED to Canada from the US b/c our son is autistic and we wanted to get the support Canada (specifically BC) offered. My wife is a GP and worked at the single best hospital system in the US and we couldn't get anywhere near the support we could up here in BC. That number you quoted ($80k/year) is almost exactly the number it would have cost us to get just therapy in the US, let alone an in class-room aid and in-home tutor. That said, getting the official diagnosis did take some time but we were able to around that by paying out of pocket (around $1500 CAD) to get the official tests and what not. Also, once you have the diagnosis, there was no waiting for therapy. We could get it right away. Our son now has an aid 50% of the time he is in school. We have in-home therapy a few days a week (we pay for most of this; only some of it is covered), and we have access to parent training and special child social training courses. There is a very good reason we live here and it is b/c BC has a great support system for autistic children. Like any bureaucracy the Canadian medical system can be very hard to navigate and I've heard stories of people giving up b/c they can't figure out the next steps, which is terrible. But the bottom line is BC was far and away better than anything we could have gotten in the US.