4 ms·
Sorry to hear about that. My mother was diagnosed with glioblastoma. She had the "standard" treatment, surgery to remove as much of the tumor as feasible, radi
by jabl 11y ago
Sorry to hear about that.
My mother was diagnosed with glioblastoma. She had the "standard" treatment, surgery to remove as much of the tumor as feasible, radiation and chemo. In the end, she passed away in about 4.5 months from her initial diagnosis. The doctors had originally given her 1-2 years; I don't know if that was just an optimistic estimate in order to give some hope, or whether my mother just happened to be one of the cases which didn't survive the average estimate (everyone can't beat the average...).
Due to other life circumstances, I didn't have that much opportunity to research the issue, but my takeaway was basically that you can group stuff you find on the internet into 3 groups: A) research, results which may be inconclusive or at least not dramatically better than the standard treatment B) desperate grasping at straws, typically by patients or their kin, not experts in the field C) scams prying on the emotional anguish of the affected persons. So my conclusion and recommendation would be to trust your oncologist, and/or if you want another opinion, ask another oncologist. Unless you're an expert able to distinguish the wheat from the chaff, don't put to much trust into whatever you may find on the internet. (FWIW, I have a research background, although not in medicine; YMMV.)
Beyond the medicine and treatment thing, a few other points:
Realize that glioblastomas have extremely poor 5-year survival rates (or however you wish to measure it). While a positive attitude is always important in dealing with any serious disease, the bottom line is that, most likely, your relative will pass away within a couple years. There is no miracle cure.
IOW, perhaps rather than obsessing over whatever cures may be brewing in research labs, focus on your relatives quality of life for whatever time she/he may have remaining. Also keep in mind that brain cancers are nasty in that they can change the personality of the patient, and towards the end they can get more and more incoherent, sleep more and more and eventually go into a coma. So if you have something important to say to or discuss with your relative, do it ASAP rather than wait until it may be too late.
My family, including my mother, took solace in that she had lived an almost full life, she was on the verge of retirement etc. I can only hope that your relative is also older, for a younger person I can only imagine how utterly devastating and hopeless it must be.
Best of luck to you and your relative.